11 Jul Please answer original forum with a minimum of 400 wordsRespo
Please answer original forum with a minimum of 400 wordsRespond to both students o separate pages with a minimum of 200 words eachpage1 – Original Forum with References page2- Victoria Response page 3- Stacey Response original forumMedical care with dignity can be a challenging topic – and one that you may not have thought much about until now. Death with dignity is also starting to become a topic of debate within pediatric settings. At what point do patients (and parents) have the right to terminate treatment and focus on quality of life for their time remaining? At what point in medical care to we advocate for what is most important to the patient, which for some may be continued treatment, or for others may be ending painful suffering? There is no right or wrong answer here, but what are your thoughts on dignity within medical care, and what does that look like to you within a pediatric setting?Student ResponsesVictoria When I took the class on ethical issues in medicine, I learned a lot about death, and the legalities surrounding it. Things have significantly changed over the decades, but pediatric death with dignity seemed to be lacking in research. In one article that I read that discussed the importance of allowing natural death (AND), it stated that it is important to respect what the family says is significant and important to them. This is where the “dignity” portion of dying with dignity comes into play. Allowing both the patient and their family to feel comfortable about the decision that is being made is crucial.Another important factor in making difficult decisions such as ending treatment is the establishment of a partnership between the medical team and the family. Children will often times lack the autonomy that is needed to make decisions regarding curative treatment due to emotional and developmental limitations. Legally, the decision to stop treatment of a minor falls on the parents. Both the healthcare team and the family should feel confident in the decision being made. There is no right time to terminate treatment, and for everyone involved, the choice can be extremely difficult. That’s why it is important for medical personnel to use jargon that is easier for their patients to understand. Most medical terms can be technical, and difficult for patients and families to understand, especially during a trauma. Researchers in a study about end-of-life terminology found that “parents and providers must understand and consider the wishes of the child, their prognosis, and the potential difficulty of long-term symptom management” (Jones, 2008) when discussing whether or not to end treatment.I think it is important for patients of all ages that physicians present every option available, no matter their age. Many people assume that children do not understand death, but from what I have learned in this class and others like it, they understand it well, sometimes better than adults. As a child life specialist, I know it will be my job to actively communicate and explain these options to children and their families. While I am not looking forward to watching my patients suffer, I am excited to know that I will be able to be a voice, and advocate for children who would otherwise continue to be in pain. Emotional connections between physicians, healthcare teams, and patients, along with phrasing, are essential when it comes to making these types of decisions.I hope that everyone has a great rest of their week!ToriJones, B. L., Parker-Raley, J., Higgerson, R., Christie, L. M., Legett, S., & Greathouse, J. (2008). Finding the right words: using the terms allow natural death (AND) and do not resuscitate (DNR) in pediatric palliative care. Journal For Healthcare Quality: Official Publication Of The National Association For Healthcare Quality, 30(5), 55–63.Poles, K., & Szylit Bousso, R. (2011). Dignified death: Concept development involving nurses and doctors in pediatric intensive care units. Nursing Ethics, 18(5), 694-709.StaceyAnticipatory grief, grief that occurs in a medical setting, has a benefit that regular grief does not have (HDFS403 Lesson 5, n.d.). It allows family, friend and the person who may be ill to prepare for death and grief in the near future instead of a all of a sudden death. Reading Hannah’s gift gave me an insight on death in a pediatric setting that was one I thought I would never have, children should be told the truth even if the truth is hurtful or hard to accept. When I hear “dying with dignity” I think of an elderly person making the choice over their lives no matter what the family wants or feels. They determine when they have had enough or if they want to continue to fight through the pain and suffering until their bodies give out. However, I feel that with children a lot of people, including myself, are not as accepting to that concept with them dying with dignity and deciding on their life. We naturally want to fight a little harder for children and help them survive no matter how much pain and suffering it may cause them, which is a selfish way of thinking. This class has opened my eyes and mind to consider that children are able and should be able to make the decisions on their lives and long as they understand what they are doing. I think when all life saving options have be exhausted any person, no matter age, should have their thoughts and wishes granted. It should be granted as long as their understanding is clear, and they have been explained the outcome of their decisions. If the child is not able to understand then I feel the parents should make the best decision for their child. If that decision is to continue treatment or discontinue treatment, the medical staff should respect their decisions. If the parents are making decisions that are not fully throughout or in the best interest for the child, then the medical staff can make suggestions on behalf of the child. Personally, I think it really depends on the situation. Some parents are under a great deal of stress when their child is sick and dying so they may not make the best choice because of the trauma they are undergoing with the fact their child is dying or very sick. Some parents may refuse to let go and have their child suffer through although there is no cure or come back from their illness. While other parents may just give up a little to soon to hurry up and end the pain and suffering their child is going through. Either situation can be looked at in a negative and positive way but nevertheless decisions must be made for the best interest of the patient not the family. ReferencesHDFS403 Lesson 5. Grief in The Context of Anticipated Loss & Child and Life-Threatening Illness. (n.d.). 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